I have been reading Get Emily Walking for several months now.  Today her entry really struck me.  There are big emotional ups and downs for family’s who have disabled children.  Here’s a quote from today. 

Ask any mother with a chronically ill child and they will tell you that during this time you keep your head down and focused on keeping everything together. You can’t look up for a second because if you do you’ll lose it. If you start to cry you’ll never stop so just keep your nose down and push to the end. Mom’s with sick kids need gentle help. You have no idea what it’s like to be a parent in control of everything one minute and the next you’re free falling through the air not knowing where you’re going to land. If you’re like me you’ll try to do it all alone until one day you’re so sick you fear you might collapse and you finally admit to your friends that you need a little help. If you’re lucky like me you’ll have a group of special people who try to catch you. I’m very bad at asking for help, always have been and actually I’ve very unlikely too LOL but really good friends know what you need and just do it.

I have nothing to add to that.

http://getemilywalking.blogspot.com/2007/11/my-confusion.html